Category: Side effects

Categories
Chemo Patient Experiences Side effects Treatment and Side Effects

Folfox and Oxaliplatin Induced Neuropathy

READ THIS REDDIT THREAD

Seven months since ending Folfox and my oxaliplatin induced neuropathy isn’t getting better.

  • Neuropathy could be permanent
  • Others had it dissipate at 18 months or so
  • Vitamin B, lyrica, Gabapentin, and supplements as helpful, and other coping mechanisms such as hand warmers, socks and specific types of shoes
  • Reflections/questions:
    • How can alternative medicine and other types of alternative healing help cancer survivors?
    • There should be more structured post-chemo care for survivors and more long-term follow up, as many people have permanent body disfigurements, disabilities, and other changes
Categories
Chemo Patient Experiences Side effects Social Media Treatment and Side Effects

N.E.D Today!

Read this reddit thread

N.E.D = No Evidence of Disease (Cancer free)

  • A Reddit thread composed of a survivor’s POV discussing that he’s cancer free
    • r/coloncancer also composes of other posts and comments regarding colon cancer experiences
    • Community building and helpful for sharing advice, experiences and to ask for help/support
  • CarcinoEmbryonic Antigen (CEA) is a tumor marker and its levels are very low + clear scans -> N.E.D status
  • Side effects of XELOX chemo: hair thinning, intolerance to cold, nail shedding, neuropathy in hands/feet, short term memory retention issues
    • Neuropathy can last 18-24 months
  • Reflections/questions:
    • It seems that many cancer patients are very familiar with scientific and complex biomedical terminology (overall in the r/coloncancer thread) -> is this common for many patients of other cancer types?
      • Importance of agency and communications/understanding as a cancer patient
    • Neuropathy as common side effect -> Should be studied more in research
      • Other side effects of chemo and radiation should also be given more attention to
    • Community and support groups as very helpful and therapeutic to many colon cancer patients
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