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N.E.D = No Evidence of Disease (Cancer free)
- A Reddit thread composed of a survivor’s POV discussing that he’s cancer free
- r/coloncancer also composes of other posts and comments regarding colon cancer experiences
- Community building and helpful for sharing advice, experiences and to ask for help/support
- CarcinoEmbryonic Antigen (CEA) is a tumor marker and its levels are very low + clear scans -> N.E.D status
- Side effects of XELOX chemo: hair thinning, intolerance to cold, nail shedding, neuropathy in hands/feet, short term memory retention issues
- Neuropathy can last 18-24 months
- Reflections/questions:
- It seems that many cancer patients are very familiar with scientific and complex biomedical terminology (overall in the r/coloncancer thread) -> is this common for many patients of other cancer types?
- Importance of agency and communications/understanding as a cancer patient
- Neuropathy as common side effect -> Should be studied more in research
- Other side effects of chemo and radiation should also be given more attention to
- Community and support groups as very helpful and therapeutic to many colon cancer patients
